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Post by jljenkyns on Feb 23, 2009 12:45:51 GMT 1
Well after 20 months on Tarceva the drug has now stopped working after a scan in November showed progression of the cancer. All in all i still feel fine although i had a bad chest infection which i still have the remnants of . been to see the oncologist on friday going for another ct scan with a week or so they will then check that against novembers and see what happens from there.He did mention some new trial drugs but as they are not many people on 3rd line treatment who knows but fingers crossed. anyway the board has been quiet so hopefully things are all o.k with everyone else.
jim
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duane
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Post by duane on Feb 23, 2009 13:30:13 GMT 1
Hi Jim,
I'm so sorry to hear that, your help & advice on Tarceva has been invaluable to us & many others I'm sure.
As I posted the other day it's stopped working for Ange too. I'm sitting here waiting for the phone to ring as the Christie are going to get back to me today with Ange's 3rd line treatment, I'll post when I know what that is. Ange is breathless now but as of last Friday is fit for treatment.
Take Care
Duane
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Post by jljenkyns on Feb 23, 2009 18:09:31 GMT 1
Hi Duane
thx for you reply i knew eventually the tarceva would stop working but as far as i am concerned i am still here pretty fit and still fighting, i hope ange gets to here something positive soon, nice to hear she is fit for treatment.
jim
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duane
New Member
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Post by duane on Feb 24, 2009 11:50:24 GMT 1
Hi Jim,
an hour after my last post Ange got taken to the local A & E. Breathing dreadful, I've spent all night there with her (staff were wonderful) & she's getting worse. I can't get over the fact we were in the Dominican 10 days ago looking forward to a few more months on Tarceva. Unless her breathing stabilizes I can't see her getting 3rd line, it's being treated as an infection, I just hope their right. Christies did ring yesterday & have made an appointment for Friday to start a new treatment, they want to see Ange before deciding on which one, again Alimta was mentioned.
Take Care Jim
Duane
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Post by jljenkyns on Feb 25, 2009 10:52:58 GMT 1
Hi duane
how ironic because we coame back from the far eat and exactly the same happened to me with the breathing, has ange tried the steroids yet? they have certainly improved my breathing i would go as far as to say 75% improvement. i think it sounds as though we both have had the same ailment with the chest infection i have had mine for 2 months, Ange is strong she will pick up and hopefully start new treatment soon , i will let you know what drug they are going to try me on for 3rd line as soon as i find out.
take care duane give my best regards to ange the fight continues
jim
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aditi
New Member
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Post by aditi on Feb 25, 2009 23:17:13 GMT 1
I dont know if you remember me.
My Mum lives in India and has got the same problem.She spoke to you about a year ago when she was here.Recently she developed pleural effusions which had to be drained.She has been on Tarceva.Now the doctors there are going to start Alimta.
Does anyone have any experience of this?
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Post by jljenkyns on Feb 27, 2009 1:07:43 GMT 1
Hi aditi
yes of course i remember you and so glad your mum is still fighting the cause, Has the tarceva stopped working for her? i dont know of anyone as yet who has tried alimta but i hear it is very good also. keep us informed please
jim x
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Post by dtay on Mar 5, 2009 21:23:06 GMT 1
Hi Jimmy and Deanne
Have just logged in and read your post, keep your chin up as there will be something out there that will help you, as you have the will and determination to beat everything !
Can you believe it was a year last week since my Dad passed - I still log in to make sure you are all doing ok, and like you I always think that because the boards are fairly quiet everyone must be doing ok.
Will be thinking about you
Dawn x
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Post by jljenkyns on Mar 7, 2009 14:20:42 GMT 1
Hi Dawn
well hopefully there will be but i am moving into new territory now 3rd line treatment but we will wait and see, it is hard to believe that it is a year for your dad how times goes. hopefully that is the reason the boards are quiet because all is going well.
keep in touch
jim
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Post by norfolkbirdie on Mar 15, 2009 18:03:29 GMT 1
Hi Jim
Just wanted to let you know I had logged in and seen your post hope all is improving for you?
I am still here in Cyprus, found a job and a place to live starting a different life- a simple one and trying to be in a place we both loved.
Think about you and log on to see how all are doing.
Take care
Ros
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Post by jljenkyns on Mar 16, 2009 23:00:03 GMT 1
Hi Ros
so glad you are in a place that you and dave loved so much, I really hope you find the life you are looking for . As for me it has been a funny few months the Tarceva stopped working in November so i ahve had no treatment since then , caught a real nasty chest infection before xmas which reaaly floored me went on holiday in january got little better but went downhill once we returned, shortness of breath now , then on saturday i started coughing up a little blood went into hospital for a day they let me out today, i have to see a professor in the next week to see about 3rd line treatment on trial. so i will jsut have to wait and see what happens apart from that i feel fine.
take care Ros
jim & Deanne xx
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Post by norfolkbirdie on Mar 19, 2009 21:58:13 GMT 1
Hi Jimj/Deanne
I hope this is a small setback and the 3rd line options are available to you or we will have to start campaigning again!! Just wanted to let you know I was following your progress and wishing you both well. Meant so much to me to have your support, actually meant a hell of a lot !! Keep fighting and demanding. The simple life is good. Still got my house and stuff in UK so no permanent decisions made just being.
Take care
Ros
X
Ros
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lee
New Member
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Post by lee on Mar 20, 2009 14:17:15 GMT 1
Hi Jimmy,
sorry to hear about the Tarceva. Good luck with your 3rd line treatment though! Without your and Deanne's fight I doubt my Mam would've had the chance to try Tarceva last year. Hope all goes well.
Lee.
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Post by dtay on Mar 20, 2009 23:09:12 GMT 1
Thinking of you Jimmy xx
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randyw
Junior Member
Just chillin with my friends
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Post by randyw on Mar 21, 2009 12:25:32 GMT 1
I have been busy and decided to check in and saw this and Thought OH No!! Good luck with third line treatment though Hope you have continued success in the fight !!
There are a number of Alimta Users at LCSC Deanne!
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gavin
New Member
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Post by gavin on Mar 23, 2009 13:19:23 GMT 1
Hi Jim
I don't know if you remember me, both Deanne and yourself gave me fantastic support in 2007 through my Dad's battle with LC and our Trust regards the Tarceva, unfortunately losing both fights.
I've just read your post and had to drop you a mail to wish you and Deanne all the very best.
Regards,
Gavin.
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Post by jljenkyns on Mar 25, 2009 23:15:01 GMT 1
Hi Gavin
yes i do , thanks for your email i am off to see a professor tomorrow re new trial drugs then see my onc on friday i will keep you posted
jim
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Post by dtay on Mar 26, 2009 21:23:01 GMT 1
Will be thinking about you Jimmy - new trial drugs sound very promising.
Dawn x
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duane
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Post by duane on Mar 27, 2009 9:41:10 GMT 1
Hope all goes well today Jimmy, thinking of you
Duane
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Post by jljenkyns on Apr 1, 2009 23:21:18 GMT 1
Hi All
Thank you all for your kind thoughts they do mean a lot. Went to see the professor on friday re the 3rd line treatment and would you believe it i became really ill whilst speaking to the professors assistant , vomiting struggling for breath etc. they immediately admitted to the new cancer wing at the freeman hospital. After various tests i was diagnosed with a severe case of bronchial pnuemonia needless to say that was a huge worry for me,deanne and all family. thay had me on a drip of antibiotics etc.after 5 days i started to feel better and as i sit and write this i have just been discharged from hospital tonight feeling the best i have done since december .still a little short of breath but pain treatment working a treat. I have an appointment next week with my onc then hopefully again with the professor i will keep you all posted
jim
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Post by paulinem on Apr 2, 2009 20:36:10 GMT 1
Hi Jim
Just heard via Vicky how ill you have been and therefore decided to become a member of your site. I always ask how you are doing and am worried everytime I hear how ill you are. I am pleased that you have had treatment for the pnuemonia as having had this myself I know how debilitating it can be. I am so sorry you are going through this and all the other things.
Sorry for waffling but you know me
Pauline xxx
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Post by jljenkyns on Apr 4, 2009 21:28:21 GMT 1
Hi Pauline
thanks for your very kind words, as for the pnuemonia it floored me big time but i have had things going on since xmas when i caught the viral bug that was going around at the time. the hardest part is the shortness of breath but hopefully the new treatment will do its work.
jim x
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Post by paulinem on Apr 6, 2009 22:14:50 GMT 1
I hope so jimmy I am so devasted everytime I read what you are going through but at the same time so proud of you for fighting to be here you give me so much strength to keep going and make me feel like I need to keep going if that makes sense. Hope to hear from you soon
Pauiline xxx
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Post by jljenkyns on Apr 17, 2009 10:15:36 GMT 1
Hi pauline
You know as well as me we all have to fight as hard as possible and puch the boundries back as far as possible , i am glad you are still finding the strength to carry on ,it is not really anything to do with me but your own mind if you know what i mean
jim xx
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