Post by Deanne Jenkyns on Mar 26, 2007 21:23:18 GMT 1
Hello All,
These boards were launced on the 26 march 2007 they are here to enable patients to communicate and share their knowledge about their fight to use up to date cancer drugs such as Tarceva. My reason for setting up these board is so we can help and support one another and our loved ones fighting for new drugs. Are you fighting for a drug? Are using a new drug? Are you funding it yourself or have you won the right to use it through the NHS? Have you been denied an approved drug even though you may benefit from it? I am currently fighting for a drug for my husband and have the support of our local MP David miliband. My belief is that all patients who can benefit from a drug like Tarceva should have it. It is available in Scotland and has been given in the states for a number of years now. If you want to know more information about the drug there is lots of information on the front of the website www.lc-action4life.co.uk If you are in the same position as us you will know how distressing this whole thing is. I am trying to do something about it and get it into the public eye. If there is more of us maybe people will start to take notice and listen. I have during my research about this drug that other patients in the country have won the right to use this drug on the NHS. Their PCT was forced to give it to them. My husband is a patient at south tyneside district hospital we asked for this drug and we were told he would be a good candidate for this drug but we would have to pay for it. The cost would be around £1,700 a month! The oncologist also said he a list of patients he believed would benefit from this drug but he could not give it to them. We have taken the matter further and now the oncologist has requested the drug from the local primary care trust for my husband. I had to request this in writing.
Don't let the NHS hide behind NICE guidlines! The PCT can still choose to fund approved drugs even if guidlines from NICE are unavailable!
Thanks for reading
Deanne
These boards were launced on the 26 march 2007 they are here to enable patients to communicate and share their knowledge about their fight to use up to date cancer drugs such as Tarceva. My reason for setting up these board is so we can help and support one another and our loved ones fighting for new drugs. Are you fighting for a drug? Are using a new drug? Are you funding it yourself or have you won the right to use it through the NHS? Have you been denied an approved drug even though you may benefit from it? I am currently fighting for a drug for my husband and have the support of our local MP David miliband. My belief is that all patients who can benefit from a drug like Tarceva should have it. It is available in Scotland and has been given in the states for a number of years now. If you want to know more information about the drug there is lots of information on the front of the website www.lc-action4life.co.uk If you are in the same position as us you will know how distressing this whole thing is. I am trying to do something about it and get it into the public eye. If there is more of us maybe people will start to take notice and listen. I have during my research about this drug that other patients in the country have won the right to use this drug on the NHS. Their PCT was forced to give it to them. My husband is a patient at south tyneside district hospital we asked for this drug and we were told he would be a good candidate for this drug but we would have to pay for it. The cost would be around £1,700 a month! The oncologist also said he a list of patients he believed would benefit from this drug but he could not give it to them. We have taken the matter further and now the oncologist has requested the drug from the local primary care trust for my husband. I had to request this in writing.
Don't let the NHS hide behind NICE guidlines! The PCT can still choose to fund approved drugs even if guidlines from NICE are unavailable!
Thanks for reading
Deanne
LC charity Ball