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Post by Deanne Jenkyns on Sept 20, 2007 10:41:09 GMT 1
Hiya all, We had a call this am from Jimmy's onc to say that the PCT would fund Tarceva for 2 months re-scan and if all is as it should be they will continue to fund it ;D ;D ;D ;D ;D ;D I feel like a huge weight has been taken of our shoulders! All the campaigning appeals and sleepless nights have been worth it! ;D ;D ;D I cannot tell you what a relief this is and how happy I feel! Jimmy has just gone off to work a happy chappy!
Thanks everyone for supporting us (((hugs))) Deanne xxx
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Vicky
Full Member
Here to support Deanne & Jimmy!!
Posts: 127
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Post by Vicky on Sept 20, 2007 11:34:24 GMT 1
Hiya Deanne and Jimmy,
I was so happy when i got your call this morning, it really has made my day honey ;D You have worked so hard with this fight to get funding and its finally paid off. I just know that your strength will be an inspiration to so many.
Congratulations to both of you.. enjoy every second of this good feeling as its what you both truly deserve after what you have been through to get to this day!!
Whooohooo so chuffed for you.. and Luke almost hit his hand at work when i phoned him with your news.. lmao!!! ;D
Are you out celebrating tonight?
Love and ((((hugs)))) to you both,
Vicky and Luke xxxxxxxxxx
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Trace
New Member
A little support goes a long way !
Posts: 23
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Post by Trace on Sept 20, 2007 21:33:15 GMT 1
Hi you two!!
What wonderful news, I don't need to tell you how over the moon we are for the both of you. I think the phone call said it all ;-)
You did it girl, the fighting spirit of the Jenkyns paid off and boy do you deserve it.
Congratulations.
All our love.
Trace & Darren. xxx
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Post by dtay on Sept 20, 2007 21:49:52 GMT 1
Fantastic news - I am sooooo delighted xxxxxx ;D
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Post by norfolkbirdie on Sept 20, 2007 22:15:04 GMT 1
Excellent!! I am so pleased for you both after all the hard campaigning you've done, at last some sense in this mad world!! Ros
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Post by joannejopling on Sept 20, 2007 22:42:00 GMT 1
Oh what a good reason for a party or a ball maybe ;D, wow the news just made my day, lets hope it opens the flood gates for all.
heaps of love Joanne x x x x
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Post by Deanne Jenkyns on Sept 20, 2007 23:17:26 GMT 1
Hiya All, Thanks so much spent most of the day crying...it's a small victory in the cancer world..huge one for us but others are still fighting for being denied these drugs and even worse not even been made aware of them! Thanks so much everyone for your support...I am crying again now...mixture of wine and emotions lol!
(((hugs))) to all Deanne xxx
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randyw
Junior Member
Just chillin with my friends
Posts: 80
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Post by randyw on Sept 21, 2007 0:48:37 GMT 1
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Post by phillipa on Sept 21, 2007 11:09:27 GMT 1
Thank you Deanne and Jimmy. Now the floodgate is open. Maybe our Onc knew something but he wasn't saying, when he told us that there was always Tarceva for Kent, but not yet. Could this be a new set of guidelines and sense is being seen.
Thank you for the campaigning, the sleepless nights and the utter despair and frustration you have gone through for rest of us.
Way to go..............................
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sam07
New Member
Posts: 41
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Post by sam07 on Sept 21, 2007 20:50:22 GMT 1
Hi Deanne and Jimmy Fantastic news just what you have been hoping for and rightly deserve. All your determination and hard work has paid off. Good Luck to you both Sam x x x
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curly
New Member
Posts: 7
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Post by curly on Sept 22, 2007 0:28:11 GMT 1
I was well pleased to read of your good news, I just had to blog it! It's important to keep the pressure up Jimmy's oncologist may well decide to carry on the treatment! He looks so well at the moment!
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Post by phillipa on Sept 22, 2007 12:20:32 GMT 1
Curly glad to see you have dropped in. I am happy that you have blogged this. Wonder how Specialist Nurse is these days?
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Post by Deanne Jenkyns on Sept 25, 2007 9:37:41 GMT 1
Hi Curly, Even though Jimmy has been given 2 months the PCT will fund as long as the drug is working. He will be scanned after 2 months and if there is no progression the funding will continue. Which is what we suggested they do in the very begining!! We feel this should be the case for everyone. Hopfully NICE will issue the guidlines in the next few weeks.
Deanne x
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