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Post by Deanne Jenkyns on Sept 7, 2007 14:12:22 GMT 1
Hi all,
Jimmy's onc rang today and said that he had been in touch with the PCT but Judy Thomas had been on 2 weeks annual leave. She is back not and they are holding an emergency meeting on Monday where Jimmy's case will be discussed. So we should hear early next week whether or not they are going to fund it. Me, I don't see how they can refuse when he is doing so well and they now have the CT scan results proof that the drug is working! Can they???
Deanne
xxx
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Post by phillipa on Sept 9, 2007 12:44:00 GMT 1
Who knows how their little minds work. the evidence is there and Prof Eisen is on the war path to end the post code lottery regarding PCT's funding the drugs. Monday not too far away. Are you attending?
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Post by Deanne Jenkyns on Sept 9, 2007 13:42:09 GMT 1
Phillipa, We are not allowed to attend, I wanted to attend the last appeal but it is not their policy! Will post as soon as we know  Deanne x |
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Post by phillipa on Sept 10, 2007 10:37:11 GMT 1
Might be a good thing you can't attend. I think you might feel inclined drag a couple of members across the table and ram some documentation down their throats.
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Post by Deanne Jenkyns on Sept 10, 2007 14:21:21 GMT 1
Yes...well I suppose their is that  Deanne xx |
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Post by norfolkbirdie on Sept 10, 2007 16:07:15 GMT 1
Hi
I was thinking of you and your appeal when I read the news about giving pregnant women £200 to spend on healthy food!!!!! I wondered on the cost of that versus the cost of funding Tarceva?? At least with Tarceva you know where the money goes, with giving pregnant mums £200 , who will monitor what it is spent on??? Clothes, make up etc... very kind of government. How stupid are we getting in this country???
Mad Ros
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Post by Deanne Jenkyns on Sept 10, 2007 16:58:17 GMT 1
Hi, Felt sick all day thinking about this appeal  Ros, while I am all for encouraging pregnant women to eat healthy at the end of the day, if they are going to they will without being paid to do so! I am at a loss to where this government gets it's ideas?? Deanne xxx |
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Post by dtay on Sept 10, 2007 17:25:11 GMT 1
Thinking about you and Jimmy, Deanne xx
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Vicky
Full Member
Here to support Deanne & Jimmy!!
Posts: 127
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Post by Vicky on Sept 10, 2007 17:49:45 GMT 1
Hi Deanne,
I know i've already spoke to you today but i just wanted to let you know that we are thinking about you both and sending you huge huge (((hugs)))
Love you both lots,
Vicky xxxxxxx
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Post by phillipa on Sept 10, 2007 19:36:44 GMT 1
It's gone 7.30pm. Have you heard the outcome Deanne?
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Post by Deanne Jenkyns on Sept 10, 2007 22:49:20 GMT 1
Hiya Phillipa,
Nothing as yet, The onc did say we would hear early in the week of the outcome not the same day...however being impatient as I am I emailed Judy Thomas myself this evening asking about the outcome, so maybe we will get to know sooner fingers crossed! I will update ASAP!
Deanne
xxx
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Post by Deanne Jenkyns on Sept 11, 2007 15:53:20 GMT 1
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Vicky
Full Member
Here to support Deanne & Jimmy!!
Posts: 127
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Post by Vicky on Sept 11, 2007 15:57:43 GMT 1
Grrrrrrrrrr well they say no news is good news!!!!!  Fingers and toes crossed!!! Big (((hugs))) Love Vicky xxxxxx |
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LC charity Ball
Ros, while I am all for encouraging pregnant women to eat healthy at the end of the day, if they are going to they will without being paid to do so! I am at a loss to where this government gets it's ideas?? 
