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Post by Deanne Jenkyns on Aug 18, 2007 21:12:15 GMT 1
Hi,
We recieved a reply from the PCT re next appeal. They said they needed to talk to the oncologist to see what basis they would set an appeal on!!!!!!!!!!!!! They have his CT scan results for Gods sake!!! Showwing the drug is working! They are stalling!!!!!!!!! GRRRRRRRRRRRR! This just gets worse!
Deanne
xxx
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nicki
New Member
Posts: 49
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Post by nicki on Aug 18, 2007 21:49:56 GMT 1
Words fail me once again.
You just keep persisting, I think they think you are gonna give in - we know you are not!!!!
Keep fighting girl
Love Nic
xxx
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Vicky
Full Member
Here to support Deanne & Jimmy!!
Posts: 127
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Post by Vicky on Aug 18, 2007 22:58:09 GMT 1
Hi Deanne,
Oh honey i'm so sorry yet again you are having to deal with this sh*t i just don't know what to say!!! I'm fuming on your behalf honey.
You know where i am, always here for you both... i'll call you tomorrow.
Love you lots,
Vicky xxxxxxx
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Post by Deanne Jenkyns on Aug 19, 2007 15:09:44 GMT 1
Hi Girls,
I am not surprised by there matter of fact attitude about this. To us the CT scan is nothing short of amazing, and the way Jimmy is in himself is amazing too! Everyone cannot believe how well he is he was diagnosed 16 months ago with stage IV disease and he is fit and well, pain free and leading a normal life. It is not about the patient anymore but about pen pushers targets and money. We are talking about peoples lives and they just shrug it off like it does not matter! I hope with all my heart that this next oncologist is on our side and will fight along side with us! all we got from the last one was my hands are tied these guys pay my wages!! What about medical ethics and what's right for the patient, that does not seem to matter anymore. I would fight to the death for my husband because I love him so much. I want to protect him and want whats right for him. I keep coming up against these brick walls but I will smash them down.
Deanne
xxx
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Vicky
Full Member
Here to support Deanne & Jimmy!!
Posts: 127
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Post by Vicky on Aug 19, 2007 17:03:46 GMT 1
Hi Deanne,
Your determination is amazing hun, so proud of how you deal with all this rubbish that keeps getting thrown at you.. i'm just so sorry that your having to deal with it!! Grrrr!!
Your right Jimmy is doing so well and he looks fab its just a shame you haven't got the medical professionals backing you 100%... like you, Luke and i hope that this next oncologist will be fighting in the same corner as you.. not like the other pathetic oncologist that let you down so badly!!!!
Lots of love to you both,
Vicky xxxxxxx
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Post by dtay on Aug 19, 2007 17:44:25 GMT 1
Thinking of you both - if anyone can get this sorted you can Deanne - go girl !!
xx
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Post by phillipa on Aug 20, 2007 11:35:42 GMT 1
Deanne,
It is about the bean counters and they are not looking at the long term picture. they see one man who has been successfully treated. they are listening to the others who say this drug is not effective. It's not effective, because it is given too late in the process. They are not looking at the productivity of a man whose quality of life is so good. This man will continue to pay taxes and contribute. Thank goodness we didn't NICE around when Louis Pasteur made his discovery. Flemming and Floyd with penicillin, no NICE then. Salk with his vaccine..no NICE, the list is endless.
Keep up the fight and don't let them grind you down.
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