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Post by Deanne Jenkyns on Jul 4, 2007 19:36:59 GMT 1
Hiya All,
Today we got Jimmys CT Scan results and we are thrilled to bits! The tumour has shrunk from 28mm to 19mm after only a short time on Tarceva, and on a lower dose and a 12 day break! We are over the moon! This will be going in to our next appeal.
Histology Report as follows:
July 5th 2007 CT Scan Results Following Tarceva
1. Primary Tumour Shrunk from 28 to 19mm
2.Reduction in the number and size of pulmonary metastases.
3. Consolidation to the tumour is less marked.
4. No significant Mediastinal Lymphadenopathy
5. No hepatic, adrenal or visualised Skeltal metastases
from a hyper!
Deanne
xxx
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Post by norfolkbirdie on Jul 4, 2007 19:58:20 GMT 1
Great news!! I am so pleased for you both, celebrate!!!
Ros
X
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Trace
New Member
A little support goes a long way !
Posts: 23
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Post by Trace on Jul 4, 2007 20:47:24 GMT 1
We are absolutely delighted for you both !! Fantastic News ! Sorry for crying on the phone today !! WHat a tit !! Hope you are having a night of celebration as I type.
I hope this gives you all the ammunition you need to fight on.
Ive had a smile on my face since you rang - god knows how you must be feeling ! WHOOPEE !!
Lots of love to you both
Trace & Darren. xxx
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nicki
New Member
Posts: 49
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Post by nicki on Jul 4, 2007 20:55:59 GMT 1
Hi D & J
WHEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE!!!!!!!
I think Trace has summed it up really, its fantastic news hon, I am soooooo pleased for you both. At last some wonderful news - now all we need is the blooming PCT to realise that you must have Tarceva prescribed. That have to come to their senses now surely.
I am sure this will be very reassuring news for other members on here too.
Yey yey yey.... well done!
Love Nicki
PS Double celebration for the 4th now!!!
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Post by dtay on Jul 4, 2007 21:09:32 GMT 1
Deanne and Jimmy
I have tears of happiness streaming down my face - I am so delighted with your news ---go and party and have a fab time !!!
Love DAWN
x
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Post by Deanne Jenkyns on Jul 5, 2007 12:54:28 GMT 1
Thanks guys!
Have a bit of a fuzzy head today! We are thrilled! there is a reduction in the number and the size of the mets in the other lung too!
Deanne
xxx
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Post by vanessa on Jul 5, 2007 20:03:24 GMT 1
hiya deanne & jimmy  wohoooooooooooooooooooo !!!!! i cant begin to tell you how thrilled i am at your news it really cheered me up when you called so so so pleased the tumour has shrunk take care luv vee & mark xxxxxxxxxxxxxxxxxxxxx |
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Post by Deanne Jenkyns on Jul 5, 2007 20:17:27 GMT 1
Hiya Vee,
thanks honey, Lovely to talk to you yesterday. hope all is well you sounded rather stressed when I spoke to you (((hugs)))
Deanne
xxx
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Post by vanessa on Jul 5, 2007 20:42:47 GMT 1
awwwwwwwww tks hun
i was just on my way to the hospital my gran needed to have an op but they had trouble getting her prepped for it and they were worried about her heart so my auntie and i had to go to calm her down but all is well now she had the op eventually
luv vee x
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Post by Deanne Jenkyns on Jul 5, 2007 20:46:36 GMT 1
Hiya Vee,
So pleased all went ok with your Gran. you must be so relieved! We have just had a Trip to A+E ourselves. We got a call saying Jimmy's Mum had been rushed in with a suspected heart attack. She is ok, keeping her in for observation. They think she has had a angina attack, thank goodness!
Deanne
xxx
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Post by joanne on Jul 6, 2007 23:04:11 GMT 1
Hi Deanne and Jimmy
Just wanted to say what great news. Now the PCT cannot argue with that, can they?
Loads of love
Jo xxx
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Post by carolanne on Jul 6, 2007 23:07:14 GMT 1
Hi Deanne and Jimmy
Don and I are so glad to read that the ct results have shown such a change
Thrilled for you both
xxx
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Post by Deanne Jenkyns on Jul 9, 2007 11:01:52 GMT 1
Hiya all,
Onc rang this AM and said he is delighted with Jimmy's results. He said he needs to discuss some things with us on thursday. He said we need to move forward now...whatever that means??? Will let you know what he says on Thursday.
Deanne
x
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Post by norfolkbirdie on Jul 9, 2007 14:35:46 GMT 1
Excellent he actually rang you back!!! Maybe he wants to ride your success with it?? Maybe now he'll fight on your side? Anyway good luck for Thursday.
Ros
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Post by amanda on Jul 9, 2007 21:43:20 GMT 1
Hi Deanne and Jimmy
What amazing news... we are over the moon for you both!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I pray that this will give your PCT a big kick up the you know what so Jimmy can have this life changing drug on the NHS.
It' so good to hear some good news... It's the best. You're both in our thoughts... you're such an inspiration to others!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Lots of love and hugs
Amanda and Simon xxxxxxxx
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Vicky
Full Member
Here to support Deanne & Jimmy!!
Posts: 127
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Post by Vicky on Jul 10, 2007 18:55:24 GMT 1
Hiya Deanne and Jimmy,
You made our holiday with your fab news.. after i spoke to you i sat in the bar sipping champagne and crying... and that night we had the whole of Cuba celebrating with you.. we are both so over the moon.. it really is the best news!!
Like everyone else i hope that this has an impact on there decision to fund tarceva.. they can't ignore the results now!!
Good luck for Thursday both of you... i hope your good news continues.. you both deserve it so much.
Love you both lots,
Vicky and Luke xxxxxxxxxxx
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Post by phillipa on Jul 13, 2007 14:49:00 GMT 1
Such great news guys and now the kick in the teeth from that dweeb.
Goes to show they don't know everything. Your tenacity is proving them wrong.
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LC charity Ball
