Chairman Of NICE

[Deanne Jenkyns]

Hi all,
I have spoke with the PR to the chairman of Nice today. Gave away a little information of what I am campaigning for and said I wanted to get through some correspondence to the Chairman. So she has supplied me with his Full contact address so I can write to him. I thought we could give him some clinical evidence from real live persons using tarceva. I am going to invite him to this website to read for himself, or if he likes to meet us in person so he can see how well Jimmy is doing and Discuss with him all the others I have came into contact with using Tarceva. Tell him it is ok to sit behind a desk saying tarceva is not cost effective and not enough clinical evidence to support it and invite him to speak to people can prove this wrong! So anyone out there not registered on this site yet fighting for and using this drug we really need to here from you. The more evidence we have the better.


Thanks
Deanne
x

[phillipa]

We are trying to get Kent's Superannuation fund unlocked to self fund for three months if this comes up today with Dr Gilligan. Dealing with the Government Superannuation Fund in New Zealand is no easy task, have had to call in the Head Chaplain of the New Zealand Navy. Let the Cahirman of NICE know what people have to go through to get the money for this. What use is this money if he dies. I get my widows mite every month . We need that money now, while there is a fighting chance.