L C action 4 life!
« Valuble information »

Welcome Guest. Please Login or Register.
Dec 30, 2009, 4:36am

[Home] [Help] [Search] [Login] [Register]



L C action 4 life! :: Lung Cancer :: LC Patients Charter & Patient Information :: Valuble information
   [Search This Thread][Send Topic To Friend] [Print]
AuthorTopic: Valuble information (Read 326 times)
Deanne Jenkyns
Administrator
*****
member is offline

[avatar]

Site Designer and Admin


[homepage]

Joined: Mar 2007
Gender: Female
Posts: 976
Location: south shields
Karma: 5
Valuble information
« Thread Started on Apr 4, 2007, 8:15pm »

  • Did you know you can be asked to be referred to "Any" NHS hospital for your treatment?

  • You are entitled to have access to all your medical records.


  • You can request a second opinion.


  • Did you know that NICE only offers guidelines about approved new medicines and it is actually up to your Primary care trust whether or not you can have access to an approved new drug or not.


  • Do your research about new drugs and ask for them. You will not be told about them.


  • Doctors are not god and no one can put a time limit on your life. They guess and they should not. I have been in contact with patients who were given 6 months and years later they are still here because the received the right treatment did not take no for an answer.


  • Take somebody with you to your follow up appointments,If you are unsure about remembering what was said take a "Dictaphone"this way you have a record of everything that was said.








« Last Edit: Apr 4, 2007, 8:38pm by Deanne Jenkyns »Link to Post - Back to Top  IP: Logged
My Husband Jimmy diagnosed with NSCLC adenocarcinoma on the 27/4/06 fought to get Tarceva on the NHS & won. Has had 1st line chemo and radical radiotherapy. Jimmy is doing great. I am so very proud of him and love him with all of my heart. [image] LC charity Ball
stayingpositive
New Member
*
member is offline





Joined: Aug 2008
Gender: Female
Posts: 11
Location: London
Karma: 0
Re: Valuble information
« Reply #1 on Apr 22, 2009, 5:04pm »
Very valuable information indeed!
We have not been told about ANY new treatments, we had to do the research ourselves and DEMAND the new drugs like Tarceva!
Link to Post - Back to Top  IP: Logged
Husband Alex dx NSCLC stage 3b August 08, 41 yrs old. Told inoperable & incurable! Mets to liver & rest of lungs Jan 09 now right lung adenocarcinoma. 1st line treatment Gemcitabine & Cisplatin chemo, 2nd line Docetaxel chemo - both of which failed to halt the progression or spread.
Being treated on the NHS (gulp!)
   [Search This Thread][Send Topic To Friend] [Print]

Click Here To Make This Board Ad-Free


This Board Hosted For FREE By ProBoards
Get Your Own Free Message Boards & Free Forums!